That sentence surprises people.
Grateful?
Yes. Grateful.
Not because hospital stays are easy.
Not because the fear disappears.
Not because I would ever minimize the hard.
Not because the fear disappears.
Not because I would ever minimize the hard.
Having a medically complex baby has slowed me down in a world that glorifies busy. It has forced me to notice things most people rush past —
I celebrate things I never would have noticed before.
Gratitude lives in those moments.
This journey has refined me. The laundry can wait. The emails can wait. Even the opinions of others can wait.
But this child?
This life?
This miracle in front of me?
This life?
This miracle in front of me?
That CAN NOT (and will not ever have to) WAIT
My baby has taught me courage without ever trying to. She has taught me resilience before she could even speak. She has shown me that strength doesn’t always look loud — sometimes it looks like a tiny body fighting battles most people never see.
Because of her,
I don’t take ordinary days for granted anymore.
And while I would never wish medical complexity on any child, I can say this with my whole heart:
Not in spite of her complexity.
But alongside it. 